Theodore's blood chemistry is improving. So today he is being transitioned from 50% feeds to 75%. This means 6 - 4 ounce bottles per 24 hours instead of just 4. There is a possibility that this change will throw his electrolytes out of whack again. If it doesn't, then if is safe to say he is progressing.
There is the type of progress that you can measure with blood tests and then there is the other type of progress...the kind that you can experience. My heart was so full today as I watched Theo becoming more alert and less cranky. He was feeling so good that he started smacking himself in the face again! haha!
I know, that is not really funny, but it is reality. Theo sometimes will stare at his hand for a moment or two and then suddenly smack himself with it. I'm sure this sort of behavior originated out of boredom and lack of human contact. I wonder if he will give up this sort of stimulation one day?
Another way to tell that your child is feeling better is when they start being naughty again! Theo was a very naughty boy today and pulled out his booger crusted ng (feeding)tube! This hurt, since he pulled a huge piece of tape off his face as well and he cried and cried. Little turkey! Since he is taking all of his food by mouth, it will stay out for now. I'm hopeful that it will stay out for good!
Other good news today, Theo's thyroid checked out normal! Yay! His heart echo was nearly perfect. Yay! Excellent news for him. As hard as it is to be away from my husband and other children, I'm so happy to be here with him and get all his systems checked out. I'm not anxious about anything. :)
Saturday, August 28, 2010
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Praise the Lord!! I'm so happy to hear that Theo is getting better, even if he is getting naughtier too! hehe Praying for continued blessings Steph!!!
ReplyDeleteThanks for the update. So happy to hear he is getting better, even if slowly, and that tests are coming back normal.
ReplyDeleteHey Steph - We are here in the world you just left. It is 5:21 am - we are still jetlagged and only at weird hours does our computer work well. usually we sit and watch the screen without action. Kind of boring - our e-mail is covenantb@yahoo.com - Drop a line. Missing home would be a major understatement. So glad Theo is doing a little better. You need to stop living the institutional life and GO HOME!!
ReplyDeleteSo glad Theo is getting the medical help and care he needs! It is so hard right now, but soon you will be able to look back and say it was not that bad and of course so worth it!!! --at least you are not in a hospital in UA! :))) Praying for your little booger (he is sooo cute)!!!
ReplyDeleteI have been praying for little Theo and I am so glad to hear that he is doing better. I will pray for your husband's endurance and yours also (being in the hospital is no picnic).
ReplyDeleteSo glad things are getting better. I can hear the joy and peace in your words. Praying that the ng tube is out for good! Praying for quick healing and that you would both be able to go home soon!!!
ReplyDeleteHugs
Leslie
so very happy he is getting better, really hope you are home soon.
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