Theodore's blood chemistry is improving. So today he is being transitioned from 50% feeds to 75%. This means 6 - 4 ounce bottles per 24 hours instead of just 4. There is a possibility that this change will throw his electrolytes out of whack again. If it doesn't, then if is safe to say he is progressing.
There is the type of progress that you can measure with blood tests and then there is the other type of progress...the kind that you can experience. My heart was so full today as I watched Theo becoming more alert and less cranky. He was feeling so good that he started smacking himself in the face again! haha!
I know, that is not really funny, but it is reality. Theo sometimes will stare at his hand for a moment or two and then suddenly smack himself with it. I'm sure this sort of behavior originated out of boredom and lack of human contact. I wonder if he will give up this sort of stimulation one day?
Another way to tell that your child is feeling better is when they start being naughty again! Theo was a very naughty boy today and pulled out his booger crusted ng (feeding)tube! This hurt, since he pulled a huge piece of tape off his face as well and he cried and cried. Little turkey! Since he is taking all of his food by mouth, it will stay out for now. I'm hopeful that it will stay out for good!
Other good news today, Theo's thyroid checked out normal! Yay! His heart echo was nearly perfect. Yay! Excellent news for him. As hard as it is to be away from my husband and other children, I'm so happy to be here with him and get all his systems checked out. I'm not anxious about anything. :)