Psalm 68:5-6

A father to the fatherless, a defender of widows, is God in his holy dwelling.

God sets the lonely in families, he leads forth the prisoners with singing; but the rebellious live in a sun-scorched land.

I am Stepanie Nance. My family adopted two little boys with Down Syndrome from Ukraine in 2010. I hope to educate and to inspire you. I hope to make you laugh and to make you cry.

Come along for the ride. It's a wild one!

Saturday, August 28, 2010

Saturday morning with Theo

Fun, weird fact about my son, Theodore: he sleeps with his eyes open. I'm pretty sure this is uncommon in the general population, but what about post-institutionalized children?

I'd share a photo of this, but I am presently cameraless! I've borrowed cameras from my teenage sons for a few years and now they have both gone away to college. :( I guess I will have to break down and buy a decent camera.

Theo is snoozing right now...I think. (yes, eyes are open) He has endured so many needle sticks in the past few days that most of his veins are blown. Last night the experts were called in to draw his labs. They put an IV into a nice vein in his ankle specifically for blood draws. This morning it is barely working so I don't know how long it will last. If his blood chemisty stabilizes he won't need so many sticks. If it doesn't stabilize he may need a more long term line put in place...central line, picc line...I don't really know.

Being away from my family yet again is so difficult. We have been so blessed to receive much assistance in the way of childcare, meals and such over the past two months. I don't really feel like I can ask any more from our friends and family. It just feels like so much.

My poor husband. He is the most capable father that I know. He takes the job meds on time, cleaning poop disasters, disciplining with gentleness and love. He's just carrying the majority of the load again and I feel bad. He is an usher at church tomorrow but we've decided that Zhen cannot handle the church scene just yet. What to do?

I just want to say again how amazing this hospital is. Children's Mercy rocks our socks. What a blessing to have this level of care for my new son.

1 comment:

  1. Just when you think the hard part is over you get another curve ball thrown your direction. Sounds like little Theo is in good hands there. So wonderful that you have such an amazing husband to help carry the load. From one RR mom to another...hugs and prayers.
    Heather F.



  © Web Design by Poppies Blooming 2010

Back to TOP