Fun, weird fact about my son, Theodore: he sleeps with his eyes open. I'm pretty sure this is uncommon in the general population, but what about post-institutionalized children?
I'd share a photo of this, but I am presently cameraless! I've borrowed cameras from my teenage sons for a few years and now they have both gone away to college. :( I guess I will have to break down and buy a decent camera.
Theo is snoozing right now...I think. (yes, eyes are open) He has endured so many needle sticks in the past few days that most of his veins are blown. Last night the experts were called in to draw his labs. They put an IV into a nice vein in his ankle specifically for blood draws. This morning it is barely working so I don't know how long it will last. If his blood chemisty stabilizes he won't need so many sticks. If it doesn't stabilize he may need a more long term line put in place...central line, picc line...I don't really know.
Being away from my family yet again is so difficult. We have been so blessed to receive much assistance in the way of childcare, meals and such over the past two months. I don't really feel like I can ask any more from our friends and family. It just feels like so much.
My poor husband. He is the most capable father that I know. He takes the job seriously...giving meds on time, cleaning poop disasters, disciplining with gentleness and love. He's just carrying the majority of the load again and I feel bad. He is an usher at church tomorrow but we've decided that Zhen cannot handle the church scene just yet. What to do?
I just want to say again how amazing this hospital is. Children's Mercy rocks our socks. What a blessing to have this level of care for my new son.