Psalm 68:5-6

A father to the fatherless, a defender of widows, is God in his holy dwelling.

God sets the lonely in families, he leads forth the prisoners with singing; but the rebellious live in a sun-scorched land.

I am Stepanie Nance. My family adopted two little boys with Down Syndrome from Ukraine in 2010. I hope to educate and to inspire you. I hope to make you laugh and to make you cry.

Come along for the ride. It's a wild one!

Saturday, March 19, 2011

Not out of the woods...yet.

Thank you to everyone who has been praying for Carrington. You saw the photos so you know she is in really terrible shape. After talking to her new mommy today, it sounds even worse than even I expected.

She is getting the best available medical care in a large, big city hospital. And has been for a few days now, but she is not out of the woods yet.

Here are a few of the facts:

1. Carrington weighs only 11 lbs at age 3 1/2.
2. Her echo cardiogram showed no defects BUT but they couldn't complete the test because she is too emaciated.
3. She does not have HIV, but still waiting on some other tests including an MRI.
4. NG tube feedings were started but Carrington started to reflux at 11cc per hour so those feeds have been stopped for now. (11cc is less than half an ounce)
5. She has been sleeping finally, 16 hours straight at one time!
6. Though her hips are not dislocated, something about them is not right so an ortho consult is in the works.

The doctors say that Carrington has been slowly dying. The can't even do surgery to help her reflux because she would not survive it.

This girl was in the same room as Zhen last summer. There are other smaller than average children in there, but no others in that same sort of awful condition. Not that I know of anyway. Most of the children in that particular room are quite chubby and healthy, like Anna and Zhen. It doesn't make any sense.

I noticed her last summer...slumped over in a high chair when I arrived to pick Zhen up for our visit. When I brought him back over an hour later she was in the very same position. No one could even be bothered to straighten her out? I was so relieved when her family committed to her. I was just sure that she was pretty much always ignored.

I could say more. Later perhaps.

Please remember Carrington's mommy. She's completely frazzled after an emotionally charged two month long adoption journey. She missed her children at home terribly. She has been stressed and sick and at the end of her rope.

I know EXACTLY how she feels. She's home but she's not home. Her daughter was rescued from one institution but now she's stuck in another institution. And after being on the receiving end of so much support over the past few months it is impossible to ask for even more help. Come back tomorrow - I hope to share a few ways you can help, if you are so moved.

4 comments:

  1. praying with a heavy, heavy heart.

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  2. Thank you for the update...I feel helpless...BUT...am praying. Please share with her family that we are praying for God to intervene and to Carrington I say rise up little one in the name of Jesus...you are loved...you are loved..you are a child of God. Through God, Carrington you have the strength to rise up...I pray that her body will accept the feeds...that no matter hoe slow it may be that her body will, in the name of Jesus, begin to accept. I pray for healing, for strength for the family, for wisdom of the doctors, and for your holy spirit to flood her from right now as I sit here praying...flood her room...flood her room...continue to rise up sweet girl...I sat it again you are loved...in Jesus name. Amen.

    Again, thanks for the update.

    Stephanie lynch
    Www.openedeyesadoption.blogspot.com

    ReplyDelete
  3. thank you for the update. We are praying here.

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  4. Thank you so much for the update - there are so many people praying for Carrington and her family.

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